Diverticulitis stories - page two
The
story of...Stephanie
I was diagnosed with diverticulitis in June 2005 after a night of
excruciating abdominal pain and a visit to the ER. I was on
antibiotics for two months and despite massive amounts of these drugs
my sigmoid colon abscessed and perforated my colon. To say the pain
was unbearable is an understatement. If help was not available, I
would have chosen to die.
I ended up with a hospital stay of 16 days and then home for four
weeks to reduce the inflammation in the colon. Followed up by a two
foot resection of the sigmoid colon. Fortunately I do not have a
colostomy bag.
I am a 46 year-old woman and am a healthcare professional. I tire
very easily now and feel exhausted almost every night around 6pm. I
exercise, ride a bike, etc. I have always been very athletic. Don't
smoke. Not overweight. Does anyone else have this exhaustion?
E-mail Stephanie: tigerzz[at]alltel.net
The
story of...Eileen
I've just found out through a barium enema that I have
diverticulitis. I am concerned as my doctor says it's in the large
bowel and the colon. I didn't seem to get much advise from my doctor,
but I go back to the hospital in May as a follow-up. I have been given
mebeverine tablets to take when I need them.
I don't understand when people say they have had several attacks.
My pain is in my left side constantly and my stomach is bloated
constantly. The pain is like a ball of wind under my left ribs. I have
had these symptoms for seven months now.
I don't drink a lot of fluids which I have been told I must, and
I'm wondering if it's through eating a lot of bread which is my main
diet. Besides fruit and veg has anyone got any dietary tips.
E-mail Eileen: eileenw2[at]hotmail.co.uk
The
story of...Jim
I was recently diagnosed with diverticulitis. I am 41 and have
always had bowel issues, although nothing that has affected my
lifestyle at all. Even now I have had my second bout of pain from the
diverticulitis and the antibiotics clear up the pain by day three.
However I had a scare about five days into my antibiotic treatment
as I passed blood, about a tablespoon, at the conclusion of a bowel
movement. It hasn't happened since and my doctor tells me that it is a
symptom of my diverticulitis. He also told me not to be concerned
about the bleeding unless it continues. Has anyone else had bleeding
like this?
E-mail Jim: jfricejr[at]comcast.net
The
story of...Debra
For years I suffered with upper left flank back pain. I went to the
doctor time and time again, and I was told it was my back, but then I
lost a lot of weight. One night I just doubled over in pain, went into
the ER and a surgeon decided it was my appendix. The next day I was
still no better.
After a few more days the surgeon decided to take a look at my
bowel, and when I woke up he said I had had a severe attack of
diverticulitis. I have had an attack now for over a week, I know it
was probably something I ate last week. It has been helpful reading
some of your stories, as I was never told exactly what I could or
couldn't eat.
E-mail Debra: sas_pur[at]msn.com
The
story of...Ronnie
I just got diagnosed with diverticulitis last night. I have had
five attacks within the last one to one-and-a-half years and never saw
anyone about it because the pain would only last about two days. But
after having an attack just last month and another in the past couple
of days, I was annoyed enough (and doubled over enough) to go to the
ER.
By using the internet, based on my symptoms, I had narrowed it down
to an ovarian cyst or diverticulitis. After having a trans-vaginal
ultrasound, the possibility of an ovarian cyst was ruled out. So it
was onto the CT scan w/contrast.
I had to drink three large glasses of some substance that they
mixed with peach iced tea - still tasted yukky, but it was tolerable -
anything to get rid of the pain. They gave me Toridol in an IV and
three Tylenol tablets orally.
The CT wasn't bad either, and it was quite a relief to finally have
an actual diagnosis for the pain and learn that it wasn't cancer. I do
know that one of the things that I am guilty of is not drinking enough
water - I am so busy that I often let myself get dehydrated. Now my
concern is having to pay close attention to my diet and trying to
figure out the food triggers for this pain. Wish me luck.
E-mail Ronnie: brianandronnie[at]aol.com
The story of...Eileen
Hi everyone. My sister has diverticulitis, and has had all the
tests, and was on antibiotics by IV. Her first attack was early in
December, and she has been in and out of the hospital since then. She
is now at home, and is not improving that much.
I have been searching on the internet for things that might help
her. Has anyone tried aloe vera, and has it helped? What about papaya?
She told me that she doesn't seem to be healing that well, and I would
like to know if anyone had tried aloe vera or papaya, or any other
treatment, as to help the intestine to heal. Any information will be
appreciated.
She eats small meals through the day, and finds that this is better
than trying to eat a full meal. She is allergic to milk and rye, she
has soya milk, and uses this on cereal, and is going to cook with it.
I have found some recipes for cooking with soya, and am going to send
them to her. Thank you.
E-mail Eileen: Brysea[at]telus.net
The
story of...Dotty
I also have diverticulitis and this is my second bad bout. No pain
meds helped me. I just came home from the hospital and now have to see
a surgeon. I am 56 years old and need to have surgery. If anyone has
had the surgery please let me know, thanks.
Update...Well, I had the surgery. I had a foot of the large bowel
and a foot of the small bowel removed. He said it was really bad. I
came home on a Monday and was rushed back Tuesday from my incision
opening up. I had an infection and I was really sick. Well it's been
three months now and I have this terrible pulling on both sides of my
belly. I've got to go for a catscan to see what's up.
E-mail Dotty: dottyann49[at]msn.com
The story of...Adele
I am 44 year-old mom of a 15 year-old. I woke up in agonizing pain
a few days ago and went to the ER and was diagnosed with
diverticulitis. This has been one of the most painful things I have
ever experienced!
I am on two different kinds of strong antibiotics and drinking
water like mad. I also am very bloated. I cannot get constipated
because I am being treated for an anal fissure due to hard BMs. I am
thinking this is stress-related? Does anyone else think that this
could be stress-related? Also my mom, and grandmother and uncle all
have this. Is this something that runs in families?
E-mail Adele: delsa61[at]comcast.net
The story of...Lisa
I am a 32 year-old mother of three small children. I just spent
five days in the hospital fighting my second bought of diverticulitis.
My doctors have mentioned the surgery and I am looking for any input
from others who have had it done.
E-mail Lisa:lbrant31[at]hotmail.com
The story of....Carol
I have been suffering from diverticulitis for many years. I have
just had a colonoscopy, which has shown up severe evidence on my
left-hand side. My symptoms are not so much pain but feeling flu-like
symptoms, tired, bloating and constipation.
My surgeon in now wanting to take out part of my bowel and I would
like some feedback on this operation. I have also had 10 bladder
infections in the last six months, could this also be connected? I
look forward to some helpful advise.
E-mail Carol: bminer[at]xtra.co.nz
The
story of...Derrick
I was diagnosed with diverticulitis approximately three years ago
after several short stays in hospital and loads of tests. Like most
people on this site I was told to go away with a high fiber diet.
Great, I thought, until the next time.
I was also given antibiotics which helped. Great, I thought, I can
live with this once in a while. But this attack has now lasted eight
weeks and five lots of antibiotics later things don't seem to be
getting better.
My doctor has not mentioned surgery and I would not be keen anyway.
I have found it a very lonely disease (and hard to explain to work
etc). I have found the site very useful, thank you to you all for your
stories - I now know I'm not alone.
E-mail Derrick: zoo[at]pendirk.wanadoo.co.uk
The story of...Margaret
I have suffered from IBS for 15 years and now have diverticulitis.
I have now had my first bad attack and it has lasted for three weeks.
The pain on the left lower side is very acute which is driving me
insane. Painkillers and antibiotics have been of no use.
I am scheduled for a barium soon. Is there any cure for this
terrible and painful illness, as I do not want surgery? Please help.
E-mail Margaret:
margaret.muir7[at]btopenworld.com
The
story of...Kevin
I was diagnosed in November of this year with diverticular disease.
I have undergone both a sigmoidoscopy and a barium enema, but I do not
get the results of the enema until 3 January 06.
The only thing that really concerns me is that I am experiencing
most of the pain on my right lower side. I have done some extensive
research and all the pointers seem to be to a condition called
appendiceal diverticulitis. Is there anyone out there who has been
diagnosed with this? If so, I would be grateful if you could tell me
how you were cured of this if at all! Many thanks.
E-mail Kevin:
kevin.hill437[at]virgin.net
The story of...Stanley
Hi, my name is Stan. In June 2004 I was hospitalized for four days
due to high fever, bloating, and high white blood cell count. I was
diagnosed with diverticulitis in August 2004.
In September 2005 I was hospitalized again, and this time I was in
a bit more trouble. Again my white blood cell count was off the charts
along with the fever and bloating, but the kicker was that my colon
perforated. Antibiotics were not going to fix this problem.
So off to the operating room I went. Five and a half hours later I
came out with an ostomy bag and seven inches shorter of colon. I spent
17 days in the hospital of which six days were spent in SICU.
Now it is January 2006 and I am scheduled for another surgery on
January 4. It is time for the doctors to put humpty dumpty back
together again.
I have always loved my fruits and veggies. I will have to agree
with Tessa, I believe stress also plays a big role in this disease.
E-mail Stanley: svining[at]centurytel.net
The
story of...Tonya
Hi everyone, I am in need of some advice. My grandfather who is
almost 80 years old was just diagnosed with diverticulitis this year
after about seven years of going through tests and hospital stays. He
has been through so many doctors and tests that he has pretty much
just given up on it.
He is about 6'3" tall and only weighs about 100 pounds because of
this disease. The only treatment that they will recommend for him is
to take antibiotics for 10 days out of every month for the rest of his
life.
It really kills me to see my grandfather go through this and would
like to know if there is any other treatment out there for this
disease. Also I would like to add that he tries to eat a high fiber
diet but most days he feels so horrible that all he wants to eat is
soup. Thank you for any advice!
E-mail Tonya: chtoas[at]mchsi.com
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